Survivor Stories
Aria’s Story
Aria was just five months old when her parents were told that a rare tumor had formed near her tiny heart. In a matter of days, their world went from lullabies and bottles to hospital beds and quiet prayers. Her diagnosis was so rare that even the doctors struggled to explain what came next.
Her parents felt like no one understood what they were going through until they found Little Hearts Strong.
Through our growing community, Aria’s family found comfort in knowing they weren’t alone. Other parents reached out. Messages of support poured in. A local high school learned about Aria through our page and together we helped organize a small donation drive in her honor. They collected care packages and handwritten cards which were delivered to Aria’s hospital floor. It wasn’t much, but to her parents, it meant everything.
Aria’s condition remains critical, and her family is still fighting every single day. But they say that because of the compassion and support they felt, they now carry something they didn’t have before: hope.
While this story is inspired by many real journeys, it reflects the kind of love and impact Little Hearts Strong exists to create through community, connection, and the kindness of people who care.
Liam’s Story
Liam was just over a year old when his doctors discovered a rare cardiac tumor. His parents were devastated and overwhelmed. Between hospital visits and trying to understand a diagnosis they had never heard of, they struggled to find support or even someone who could relate.
That is where Little Hearts Strong stepped in.
Through our growing online community, Liam’s family found a space filled with other parents who understood. They connected with caregivers, survivors, and supporters who reminded them they were not walking alone. With help from one of our partner organizations, Liam’s family received emotional support resources and access to pediatric care specialists they had not known existed.
While this story reflects the real challenges faced by families every day, it represents the kind of journey Little Hearts Strong is here to support with compassion, connection, and care.
Words of Hope and Encouragement
These quotes are inspired by the spirit of the families we support and the hope we wish to share.
"Hearing these stories gives so much hope. It reminds us that even in the hardest moments, there is strength and light."
A Grateful Parent
"The support from Little Hearts Strong and the survivor stories have been invaluable. Knowing we're not alone makes all the difference."
A Supportive Family Member
"These survivor stories are a powerful reminder of the importance of research and early detection. Thank you, Little Hearts Strong, for your tireless efforts."
A Dedicated Supporter
Every tiny heartbeat is a miracle worth fighting for. I started Little Hearts Strong because I’ve seen the pain, the fear, and the loneliness families face. No one should have to walk this path alone. Together, we carry the weight, share the tears, and hold onto hope. Let’s show every family they are never alone.
-Layla Boghossian, President & Founder, Little Hearts Strong
Share Your Story
Do you have a story of survival, hope, or resilience to share? Your experiences can inspire others and help raise awareness for childhood cardiac cancer. Contact us to learn how you can contribute to our 'Survivor Stories' page.